Medical Madness

It seems the last few months have been filled with tons and tons of medical stuff.

Since we are a loving family and like to share in all things, we did not limit all the medical to just the boys.

Honestly what fun would that be?

We arrived home with the boys on August 10th..... 10 weeks ago today.

What would be a reasonable number of appointment, illnesses, hospitalizations, surgeries, sedations etc??

Whatever number you cam up with.... I am sure we have far exceeded it.

On August 12th both boys had a check up with our primary care doctor. Adam had a double ear infection

August 13 Adam saw his neurologist

August 13 Kaitlyn saw the doctor for a broken arm and got a splint

August 16 Kaitlyn saw the doctor to get her cast on

August 16 Brittany saw the Dr for Strep throat

Ok I cannot keep up on all the dates, but I will try to keep them in order....

Adam and Matthias see the dentist

Matthias and I go in for strep

Adam goes to the ER for possible shunt malfunction

Adam goes in for a 2 week follow up for his ears

Adam meets with a comprehensive care team of 4 doctors!!

Adam has a sedated MRI on his head

Adam sees the neurosurgeon

Adam sees the orthopedic surgeon

Adam gets casted for DAFOs

Matthias has a sedated ABR

Adam has a feeding study

Adam picks up his DAFOs

Kaitlyn goes to the Doctor to get her cast off

Adam has a seizure and gets taken to the ER

Adam rides in an ambulance for a hospital transfer

Adam returns to the ER 2 days later for high fever of unknown source

Adam stays in the hospital for 5 days

Adam gets measured for his wheel chair

Adam has an MRI on his spine

Adam gets to pick up his hensinger collar

Kevin gets injured while we were moving and takes a trip to the ER

Kevin goes to our primary care doc

Kevin gets referred to a pain management doc

Kevin has an MRI on his spine

Kevin gets spinal shot

Kevin sees a PT

Adam has dental surgery

Kevin sees PT

Kevin gets flu following flu shot

Adam sees opthamolgy

Adam has double hip surgery

Adam has a 5 day hospital stay

Alyssa goes to quick care for an infection in her lip and thumb

So 10 weeks.....

over 30 doctors appts

3 sedated tests 2 MRIs and an ABR

a non sedated MRI

4 ER trips

2 hospitals stays

2 surgeries

2 casts

That is a LOT in 10 weeks

I should also mention  that in that 10 weeks we also moved!

We discovered a LOT though..... some things we knew and many we did not

We found out Adam had double hip displasia which got him this awesome cast following surgery

All but 4 of Adam's teeth were bad

Adam is completely blind in his left eye and more than double legally blind in his right

Adam's shunt is working, but there is still a lot of fluid due to the size of his head.

Adam may not have CP but at this time the diagnosis of Quad spastic CP stands.

Adam has dysphasia... swallowing difficulty

I'm sure there is much more, but I think that is plenty.

Matthias is completely deaf. We will be trying hearing aides, but doctors doubt they will help. Cochlear implants may be an option in the future.

Adam just got released from the hospital with a Spica cast for 6-8 weeks.

He is on a pulse-ox machine to determine if he maintains his oxygen saturation.

We have an oxygen machine, 9 oxygen tanks and tons of other medical supplies here now.

We have a temporary wheel chair and will order his permanent one when he gets his cast off.

There is a LOT going on in our family right now and we would appreciate prayers.

I know many people who have adopted and nobody has a story quite like ours ;)

Where has the time gone? 2 months home!

Matthias had to have a sedated ABR to test his hearing.

Here he is getting his hands warmed for the IV

 LOL he does not like the flash

 EKG to make sure his heart is healthy enough for sedation

 5 people and 1 hour later his IV is finally in. He has tough veins!

 Goofing off :)

 peek a boo

 Getting the test done

 Not wanting to wake up

Kaitlyn got her cast cut off

 That was short lived..... Her break was not fully healed so she had to wear a brace.

 Matthias' idea of playing with Adam....

 The girls shave daddy's hair

 Grandma takes Matthias for a ride on the scooter

 Big Adam holds little Adam

 Uncle Craig

 Matthias likes to play peek a boo

 Pants are better for chewing than wearing

 One of Matthias' bruises from the failed IV

 Matthias climbed in the stroller and watched football for quite a while.

 Matthias playing with Adam's foot

August 5, 2013

2 months later October 5, 2013

 A little Halloween fun with the kids and their cousins at our local theme park

 um no.... who gave that kid an ax?? ;)

 Adam's teeth before his dental surgery

 All prepped to go back

 Waking up

 He was so sore following the mouth surgery all he wanted to do was be held. We spent a lot of time like this!

 Here is Adam awake......

 Here he is asleep.... not much difference. He sleeps with his eyes open.

 We finally got Adam into an opthamologist and found out that he is completely blind in his left eye and more than legally blind in his right eye :( I wish this were not the case, but we love him so much that we will help him to learn how to enjoy the world through touch and sound :)

Matthias' first ride

 Adam's first ride

 Matthias being silly

Adam had his double hip surgery to correct his displacia yesterday.

He is still in the hospital and in a lot of pain :(

Please pray for my little man.

I have more pictures to post, so I will do a part 2 soon.... This is just what I could access at the hospital.

Oh and here is a fun video of Matthias pushing Adam in the stroller

http://www.youtube.com/watch?v=yeOLqAWUp8Q&feature=youtu.be